Jun 10, 2014


I'd be lying if I didn't say that I was remaining silently hopeful that perhaps my tests for Wilson's Disease would come back positive.  Odd to be hoping for a diagnosis of a neurological condition, however it was the lesser of two evils.  Treatment would mean that the disease would never progress any further than where it had, unlike all other conditions that are degenerative.  However, that is not the case for my journey.  I received notice today that my copper levels were normal and therefore Wilson's disease has been ruled out.

So, I shall carry on with my Parkinson's treatment plan over the course of the next two months.  After a bad first week of remembering the meds I now have a system down and yesterday started on the 2nd dose increase of many yet to come.  Has it worked?  Not yet, but they advised me that once at the full dose for about 2 weeks I should know if it's working.  At this point in time it looks as though I have two possible outcomes.  An official Parkinson's diagnosis, or further unknown territory and to be perfectly honest out of those two scenario's the unknown territory seems more frightening.  Sounds rather odd doesn't it?  Don't get me wrong I certainly do not want to have Parkinson's disease, however there is something causing my body to break down and not cooperate.  Something causing what can sometimes be violent tremors.  There is something causing me to have extreme difficulty with fine motor skills among many other issues and having everything ruled out and then having this treatment not work would mean I'm back to square one.  Back to a world of frustration of not knowing why and still getting worse.  So at this point in my journey now that Wilson's has been ruled out I pray that the medication works.  That it provides me with some relief and periods where I'm able to hold a pen and write a note among many other things.  Thankfully at this point in time I still have more good days than I do bad ones, so I find joy in those good days.

All and all I am blessed.  I have many things despite my health issues to be joyful for.  My two beautiful daughters, a loving husband, family & friends I love that support me and a wonderful Church family that does the same.  A wonderful family Doctor & now a great specialist in NB.
As I said last week in a facebook post, that in the recent week with so many suffering such great loss like the three fallen RCMP officers in Moncton a family, a community and a country mourning such a great loss, any of my troubles seem very minor.  So today as I'm about to watch the funeral service for these men I pray for their families to have strength to get through so they themselves can find joy in their memories.

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